Nettie and Brad were determined to raise awareness and badly needed funds for research so that no other family would have to endure the pain that they had just faced. [curesearch.org]

Chemotherapy in Treating Children With Progressive Brain Tumors Completed NCT00002944 Phase 3 carboplatin;lomustine;procarbazine hydrochloride;thioguanine;vincristine sulfate 6 Fentanyl Sublingual Spray in Treating Patients With Breakthrough Cancer Pain [malacards.org]

Radiation Only in Diffuse, Intrinsic, Brainstem Glioma Not yet recruiting NCT02887040 Phase 3 Atengenal;Astugenal 11 Cyproheptadine in Preventing Weight Loss in Children Receiving Chemotherapy for Cancer Terminated NCT01132547 Phase 3 cyproheptadine hydrochloride [malacards.org]

Lymphoma Completed NCT00006102 Phase 2 becatecarin 30 Chemotherapy and Radiation Therapy After Surgery in Treating Children With Newly Diagnosed Astrocytoma, Glioblastoma Multiforme, Gliosarcoma, or Diffuse Intrinsic Pontine Glioma Completed NCT00028795 [malacards.org]

Abstract A small fibrillary astrocytoma of the brain stem led to bulbar palsy, persistent regurgitation, and death from aspiration pneumonia in a 4-month-old boy. [pediatrics.aappublications.org]

Cancer Pain Completed NCT00538850 Phase 3 Fentanyl sublingual spray;Placebo 7 Donepezil in Treating Patients Who Have Undergone Radiation Therapy for Brain Tumors Completed NCT00369785 Phase 3 donepezil hydrochloride;Placebo 8 Acupressure in Controlling Nausea [malacards.org]

Cancer Pain Completed NCT00538850 Phase 3 Fentanyl sublingual spray;Placebo 7 Donepezil in Treating Patients Who Have Undergone Radiation Therapy for Brain Tumors Completed NCT00369785 Phase 3 donepezil hydrochloride;Placebo 8 Acupressure in Controlling Nausea [malacards.org]

Abstract A small fibrillary astrocytoma of the brain stem led to bulbar palsy, persistent regurgitation, and death from aspiration pneumonia in a 4-month-old boy. [pediatrics.aappublications.org]

“We were paralyzed with fear. I could hardly breathe,” recalls Nettie. “We could not believe this was happening. Julian had always been so healthy, so happy…so normal.” [curesearch.org]

In 2010, Jeff Hurdle started experiencing headaches every few weeks. He’d never had frequent headaches before, so he ignored them. [mdanderson.org]

The most frequent presenting symptom for adult brainstem glioma is headache, which can be a manifestation of hydrocephalus. Cranial nerve deficits and long tract signs are also common. [ncbi.nlm.nih.gov]

Clinical examination revealed multidirectional gaze-evoked nystagmus, bilateral Babinski sign, and gait and (left-predominant) limb ataxia. [jamanetwork.com]

Clinical examination revealed multidirectional gaze-evoked nystagmus, bilateral Babinski sign, and gait and (left-predominant) limb ataxia. [jamanetwork.com]

Clinical examination revealed multidirectional gaze-evoked nystagmus, bilateral Babinski sign, and gait and (left-predominant) limb ataxia. [jamanetwork.com]