Box 30105 Bethesda, MD 20824-0105 Phone: 1- 301 - 592-8573 Web Address: CDC National Center on Birth Defects & Developmental Disabilities, Blood Disorders 1600 Clifton Rd Atlanta, GA 30333 Phone: 1- 800 - 232-4636 Web Address: Care Agreement You have [drugs.com]

Michael Soucie (Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention) for repeating the analyses. [nejm.org]

I remember crying buckets of tears, grieving the loss of what we thought would be a “normal” childhood for our boy. [texaschildrens.org]

[…] irritability, and spinal cord syndromes Gastrointestinal: Hematemesis, melena, frank red blood per rectum, and abdominal pain Genitourinary: Hematuria, renal colic, and post circumcision bleeding Other: Epistaxis, oral mucosal hemorrhage, hemoptysis, dyspnea [emedicine.medscape.com]

I was scared to death the first time I attempted to put a needle into my two year old's vein — my hands were sweating and slippery with nerves. I am no nurse and even get lightheaded when my own blood is drawn. [texaschildrens.org]

I remember crying buckets of tears, grieving the loss of what we thought would be a “normal” childhood for our boy. [texaschildrens.org]

I have a “Type A” personality — I like be in the driver’s seat of a situation. Unfortunately, there was nothing about hemophilia I could control. [texaschildrens.org]

We just want to sparkle some joy to them, and just do something that makes them forget about what they're going through, even if it's for a moment. [yourohiovalley.com]

[…] activity to what it was prior to the bleed Measure progress by keeping a journal DO NOT: Exercise a joint during an active bleed Return to a sport/activity following a bleed without discussing it with your hemophilia treatment center (HTC) or hematologist Forget [rarebleedingdisorders.com]